The National Institutes of Health (NIH) is interested in studying patients with Relapsing Polychondritis (RP)Click Here for More Info
Advocating increased Awareness and Support for persons affected by Relapsing Polychondritis.
The Relapsing Polychondritis Awareness and Support Foundation, Inc. is a non-profit organization dedicated to supporting and advocating research, providing patient and family assistance, educating the general public and medical communities, and increasing awareness and support of Relapsing Polychondritis.
Relapsing Polychondritis Awareness and Support Foundation’s vision and guiding principles on which our advocacy initiatives are based:
•A global awareness and support of the challenges faced by people living with Relapsing Polychondritis and the associated awareness, support and costs to society and the medical community as a whole.
•A world where people with Relapsing Polychondritis can secure access to shared information and support through patient experiences. Providing assistance to the patient community to secure specialty physician services and diagnostic services relevant to their wishes and geographical location in order to extend and improve their lives.
•A social and financial culture of innovation that supports both the basic patient communities’ interactive support and information regarding physician access, and physicians in translational research facilities for diagnostics and therapies for all patients with Relapsing Polychondritis.
A web-based environment that encourages and supports physician awareness and access to timely resources of safe and effective diagnostics and treatments for patients with Relapsing Polychondritis.
Get to Know Us
This Foundation is unlike any other Foundation for Relapsing Polychondritis, past or present. This entity had been just a dream for many suffering from this relentless disease. As an incurable and progressive condition, there is a constant need for a unified, proactive voice for current and future patients, as well as their supporters.
After many months of discussion and planning, The Relapsing Polychondritis Awareness and Support Foundation, Inc. was officially launched in April 2013. Despite having no “seed money” and being led by just four RP patients, the Foundation has received a tremendous show of support. We have a very long road to travel, but we also have the determination and dedication to make this grow and prosper. We intend to be the “long arm” and the “voice” for the ever-growing RP community.
We’d like you to get to know the leaders of the Foundation who, though sometimes too ill and in need of a break, are working very hard together to recruit supporters, spread awareness, raise funds, and much more. All of this has been and will be done in the spirit of prosperity, growth, and longevity for our mission.